July 29, 2009
Good times with our "She-Ma" & "Pop-Pop"
Not since Kyra's birthday party at the hospital have we been able to have all grandparents in the same room with all three children. This photo is worth a million smiles!
July 28, 2009
Kyra has been home nearly three weeks now! We are so pleased with her oral progress. She is now grabbing the spoon to put the applesauce in her mouth (finishing a jar a day.) We are trying to get her to take carrots and chicken, but she prefers the applesauce. We will keep at it. I consider this a personal victory to get her eating. I never would have thought we'd be this far.
I am encouraging Mikahla and Kaden to get more involved with Kyra. When she first came home Kyra was startled when they would get too close. There has been progress - a couple days ago I found Mikahla head to head with Kyra watching a movie. Kyra had discovered a typical "brother and sister game" - she is fascinated with pulling their hair. Ahh, the joyful sounds of siblings. Kaden is quite the germ watcher lately. I find him going from one santizer bottle to the next as he enters in and out of rooms, all so when he comes close to Kyra he can gently pat her head. I think this is his way of saying he cares and is happy she is home.
I have returned to work. It is difficult to leave each day, but what a reward at the end of my day.... walking into my home and seeing the beautiful smiles of all my children. Sometimes we all take for granted the "little" things that make a BIG impact on our lives. I still shake my head in amazement at where we are today. What blessings we have!
I am encouraging Mikahla and Kaden to get more involved with Kyra. When she first came home Kyra was startled when they would get too close. There has been progress - a couple days ago I found Mikahla head to head with Kyra watching a movie. Kyra had discovered a typical "brother and sister game" - she is fascinated with pulling their hair. Ahh, the joyful sounds of siblings. Kaden is quite the germ watcher lately. I find him going from one santizer bottle to the next as he enters in and out of rooms, all so when he comes close to Kyra he can gently pat her head. I think this is his way of saying he cares and is happy she is home.
I have returned to work. It is difficult to leave each day, but what a reward at the end of my day.... walking into my home and seeing the beautiful smiles of all my children. Sometimes we all take for granted the "little" things that make a BIG impact on our lives. I still shake my head in amazement at where we are today. What blessings we have!
July 19, 2009
Applesauce is not so bad
It has been a struggle to get Kyra to take anything by mouth. It would usually take 20-30 minutes to get her to eat one-half teaspoon. But today she took applesauce without much resistance. I was actually able to get Kyra to eat 2-3 tsp in approx. 10 minutes. BIG PROGRESS! She even willingly opened her mouth a few times - no need to sneak the bites in. In the end she was all smiles.
July 16, 2009
KYRA IS HOME!
Kyra was discharged from the hospital on Thursday, July 9th. We have made it one week... WOW what a week it has been. Kyra is adjusting nicely to her new surroundings. She truly enjoyed her ride home. I would have loved to know what was going through her mind as she gazed out the window of the van all wide eyed, absorbing all of this new world.
Our home has been turned into a pharmacy and we are all trying to find our way into a "normal" routine. We have had a some bumps in the road understanding the new equipment and protocol for administering tpn. Dr. D'Netto is on speed dial to help save the day. Kory and I comment at least three times a day, how fortunate we are to have Dr. D'Netto. She is an amazing, giving person and always seems to help find a way to keep us laughing thru challenging moments.
Currently Kyra has two nurses, Diane and Becky, that cover our day shifts. Both are easy going individuals who have helped tremendously in our transition. I am delighted with their care for Kyra and their ease in joining our "family." We are still struggling for night nursing and hope that this will be resolved before Kory and the kids go back to school!
To our NICU Family:
We could never fully express our sincere gratitude. We have all been thru difficult moments along this road and this journey home is a reward for everyone. Your hard work, effort and relentless determination has given our family opportunities that we never imagined. Your talented hands and hearts help make miracles possible. It has been our pleasure to come to know each and everyone of you. We will never forget your commitment and your beautiful spirits that will remain with our family always!
Our home has been turned into a pharmacy and we are all trying to find our way into a "normal" routine. We have had a some bumps in the road understanding the new equipment and protocol for administering tpn. Dr. D'Netto is on speed dial to help save the day. Kory and I comment at least three times a day, how fortunate we are to have Dr. D'Netto. She is an amazing, giving person and always seems to help find a way to keep us laughing thru challenging moments.
Currently Kyra has two nurses, Diane and Becky, that cover our day shifts. Both are easy going individuals who have helped tremendously in our transition. I am delighted with their care for Kyra and their ease in joining our "family." We are still struggling for night nursing and hope that this will be resolved before Kory and the kids go back to school!
To our NICU Family:
We could never fully express our sincere gratitude. We have all been thru difficult moments along this road and this journey home is a reward for everyone. Your hard work, effort and relentless determination has given our family opportunities that we never imagined. Your talented hands and hearts help make miracles possible. It has been our pleasure to come to know each and everyone of you. We will never forget your commitment and your beautiful spirits that will remain with our family always!
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