April 20, 2009

Celebration Continues...

Saturday, April 18th, we were able to have a birthday party for Kyra at the hospital. The nurses arranged to have the Ronald McDonald Family Room closed for a few hours so we could bring Kyra in and celebrate as a family. This was the first time we have been able to all assemble in the same room. What a special moment!


April 15, 2009

Birthday Pictures

Kyra had a wonderful day. Her nurses decorated her room for her special day. She was greeted with a "Happy Birthday" song by the NICU Staff during their rounds to which Kyra clapped and smiled. Mommy, Daddy and Grandma Patti were able to visit. Mikahla made her a special sign, complete with "Lion King" pictures. Unfortunately, Mikahla and Kaden had slight fevers preventing them from their visit. But Kyra had two "visitors" trying to make an entrance... two new teeth. Yikes, not a fan of the teeth. Here are some photo's of Kyra's day. .. ..

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April 14, 2009

Happy Birthday Kyra!
Tomorrow we will share photos and an update on Kyra's big day.
Today we are going to CELEBRATE!

April 3, 2009

Clamped And Moving In The Right Direction!

Kyra is holding her own. Still having a few issues with weaning her off of pain medication but making progress. Her throat was irritated by the vent and she has had a bit of trouble clearing this up. This week she has been "tent camping" with cool mist running to help break-up the congestion. Kyra doesn't seem to mind this too much, she can still watch "The Lion King" and the mist helps her show off all her curls. I find it a bit funny every hospital has a stern protocol for safety - and Kyra is in a plastic tent... but hey it works!
A barium test was done to determine whether the feeding tube is still in place. Unfortunately, the tube has migrated into her stomach (prior to her surgery we were told to expect this.) No plans at this time to reposition the feeding tube and we are still hoping the tube will not be necessary. Kyra is on a great deal of pain meds which alter the function of her bowel. Therefore, we will have to wait for another barium test to determine whether her stomach will empty efficiently. Once she tolerates a lower dose of pain meds her test will be re-scheduled. Right now, the concentration is on her g-tube. Prior to Kyra's surgery this tube continuously emptied because her pylorus was too narrow to pass gastric fluid. Now that her pylorus has been widened, we need to challenge the stomach to empty on its own - aka clamping the g-tube. First Kyra's g-tube was clamped for 4hrs, then 6hrs and now we are trying 8 hrs. She is not showing any signs of discomfort and her g-tube output has been significantly lower. Things are moving in the right direction ... ***Celebratory news*** WE HAVE STOOL!


"Who signed me up for this?! I mean it, I WANT NAMES!"