May 14, 2009

Wow, what a busy time this has been. Since Kyra's birthday party she has explored the outdoors. Nurse Laura and Dr. Littner were able to get her outside on a warm day. This was the first time Kyra had sunlight hit her face. She seemed to enjoy her time but was a little startled by the breeze.
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As many of you have heard, YES, we are trying to prepare for Kyra's homecoming. Kory and I are getting a crash course in nursing - well modified nursing care as it applies to Kyra. We are practicing the art of hanging TPN and replacement fluids. Over this past year we have seen the nurses make this connection so many times and it appeared somewhat easy as they carried on conversations with us, entertained Kyra, etc. ...BUT you would not believe how hard it is to get fluid to run thru the tubes - those tiny bubbles are pretty frustrating and forget it, I'm not talking while I do this ... huh, maybe that is why Kory has me take the lead on this one... quiet time!

Kyra is doing great and is growing so fast. Socially Kyra is fabulous! Her beautiful smile has the ability to entice the nurses and doctors as they stop by daily to say "hi" or to play. I am actually a little concerned that when Kyra comes home she will be bored with us. Although I know Mikahla and Kaden will be a great deal of entertainment for her. I am looking forward to waking up each day to all three of their precious smiles, to watching them play and laugh with each other, and watching that magical connection form between them.

2 comments:

  1. How exciting!!! I can't wait for my little boy to feel the air on his face for the first time too! I found your blog on another short gut child's blog. We have surgery to reconnect the intestines in June. I can't wait to see how much has grown. I was so happy to see that your daughters grew so much, how much time passed for it to grow before re connecting? I am with you, can't wait till we say NO MORE STOMA!!!

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  2. What wonderful news!! Fresh air and plans to bring Kyra home puts a very big smile on my face. :)
    I know how overwhelming it feels to know you'll be doing all of Kyra's IV care but once you get used to it you'll have your routine down pat and it will become second nature. Wishing you the best!

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