April 4, 2010

Happy Easter - check out my bunny face

Sorry for the delay in updating the blog. Kyra is doing great. It has just been very busy in our house lately. Mikahla has been involved with basketball, Kaden with Boy Scouts, and Kyra is busy pulling out all her toys, leaving them thru the house. Yeah a regular family!!!!

Kyra is still going to The Cleveland Clinic every two weeks for IVIG and checkups. She is remarkable. Her replacement fluids now run at 80cc/hr for nine hours and her IV supply company has divided the fluids into two bags to allow Kyra to wear her backpack during the day. This helps free her up and allows her to explore. She is now rocking back and forth with one knee in a crawl position but still apprehensive and will not get up on the other knee. She is recieving physical therapy one day per week. The therapist is surprised at how quickly she is responding and improving. We also put up a ballet bar and mirror to encourage her to pull herself up. Although it takes ALOT of encouragement she will stand for a good 8 minutes and is no longer locking her knees.

Kyra's vocabulary is ever expanding. She repeats nearly everything she hears. Kory and I put on music for her entertainment when we change her broviac dressing. She enjoys the Jersey Boys and now sings along (with actually words matching) to "Sherry Baby" and "Big Girls Don't Cry." Afterwards she dances to the rest of the CD. So fun to watch. She is definetly a Conrad - LOVES, LOVES her music!


Kyra enjoys ALL her toys!


Hanging out with Sis-Sis



HAPPY EASTER - LOOK AT MY BUNNY FACE

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